Volunteer to Join a Study
This section will post ongoing studies looking for family volunteer participants. Please feel free to get in touch with the contact provided for the study you may be interested in.
STRESS AND GROWTH OVER TIME: CAREGIVING AND BEREAVED PARENTS OF CHILDREN WITH LIFE-LIMITING ILLNESSES
Investigators and Staff: Susan Cadell, Betty Davies, David Hemsworth, Stephen Liben, Hal Siden, Rose Steele & Lynn Straatman
Are you a parent/guardian whose child has died from a life-limiting illness?
If so, we require parents/guardians who are willing to participate in a study of how the experience of having cared for a child with a life-limiting illness changes parents’ lives.
This extended study will allow us to learn more from the parents caring for very sick children as they share their changing experiences over time and also from a second group of parents: those who are bereaved. As a result, we will be able to investigate the differences in the stress, personal resources, and growth between both parent caregivers and bereaved parents. This is a unique opportunity to study the positive and negative aspects of caregiving and bereavement over time.
Contact: Kathy Wilson, Project Coordinator, 519-884-1970 x5261, .(JavaScript must be enabled to view this email address)
For more information visit: http://pallpedsnet.ca/net_projects/pg_study.htm
UNDERSTANDING THE EXPERIENCES AND SUPPORT NEEDS OF FATHERS OF CHILDREN WITH LIFE-LIMITING ILLNESSES
Investigators: Dr. David Nicholas, PhD, University of Alberta; Laura Beaune, MSW, Res. Dip. SW, Dr. Maru Barrera, PhD, The Hospital for Sick Children; Jonathan Bloomberg, The Wire; Mark Belletrutti, MD, Stollery Children’s Hospital
We are looking for fathers of children who are at the end-of-life as well as bereaved fathers to partake in this study (from GTA or Edmonton). The purpose of this study is to understand the experiences of fathers of a child with a life limiting illness or fathers who are grieving the death of their child; and to describe the support needs of these fathers including the perceived potential use and benefit of online support.
What is involved: Attending a focus group. Focus groups will take place in one of two sites: The Hospital for Sick Children in Toronto or the Stollery Children’s Hospital in Edmonton.
To find out more about this study contact: Laura Beaune at 416-813-7654 ext. 3372 or .(JavaScript must be enabled to view this email address) OR Visit the ‘Get Involved’ section on the website and select the appropriate box.
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