family experience
- “We want everything done”
- Beyond Words: Family communication when a dying child can no longer speak
- Cancer-Related Symptoms most Concerning to Parents during Last Week/Day of Child’s Life
- Careful investigations of the lives of dying children and their families
- Caregiving parents of children with life limiting illnesses: Beyond stress and coping to growth
- Children living with dying: Through their eyes, in their words
- Children’s perspectives of a pediatric hospice program
- Children’s Perspectives of a Pediatric Hospice Program
- Communicating with Children and Families
- End of Life Decision Making by Adolescent, Parents, and Healthcare Providers in Pediatric Oncology
- Experience, impact, and adjustment of parents related to the death of their child
- Family Perspectives on the Quality of Pediatric Palliative Care
- Health care professionals’ needs and concerns in NICU end of life care may help grieving families
- Home Care of a Child Dying of a Malignancy and Parental Awareness of a Child’s Impending Death
- Hospital Care for Parents after Perinatal Death
- Impact on parents when a child has a progressive, life-threatening illness
- Impact on Parents when a Child has a Progressive, Life-Threatening Illness
- Improving the Quality of End of Life Care in the Pediatric Intensive Care Unit
- Infant End-of-Life Care: The Parents’ Perspective
- Key Factors Affecting Dying Children and Their Families
- Living in a World without Closure: Reality for Parents who have Experienced the Death of a Child
- Managing Communication with Young People who have Potentially Life Threatening Chronic Illness
- Navigating uncharted territory: Experiences of families when a child is dying
- Parent and Physician Perspectives on Quality of Care at End of Life in Children with Cancer
- Parental bereavement after the loss of a child
- Parental Perspectives on Hospital Staff Members’ Acts of Kindness After a Child’s Death
- Parents’ Reactions to Participating in Interviews about End-of-Life Decision Making
- Parents’ and Children’s Perspectives of a Children’s Hospice Bereavement Program
- Parents’ and childrens’ perspectives of a children’s hospice bereavement program
- Parents’ perceptions of the quality of pediatric and perinatal end-of-life care
- Pediatric palliative care: What do parents want?
- Strategies used by families to navigate uncharted territory when a child is dying
- The impact on families of respite care services in a children’s hospice program.
- The Moral Experience of Families with Ventilator- Assisted Children at Home
- Transitions in pediatric palliative and end of life care
- Understanding of Prognosis among Parents of Children who Died of Cancer
- Understanding Parents’ Approaches to Treatment of Children with Cancer when Therapy has Failed