Navigating uncharted territory: Experiences of families when a child is dying
| Date: | 2005 |
|---|---|
| Author(s): | Steele, R. |
| Source: | Journal of Palliative Care, 21(1) 35-43 |
| Label: | Family Experience |
Literature Database
Family Experience
Pediatric palliative care: What do parents want?
| Date: | 2005 |
|---|---|
| Author(s): | Antle, B., Barrera, M., Beaune, L., D’Agostino, N, & Good, N. |
| Source: | Rehab & Community Care Medicine, 24, 24-26 |
| Label: | Family Experience |
Bereaved parents’ and siblings’ reports of legacies created by children with cancer
| Date: | 2009 |
|---|---|
| Author(s): | Foster, T, Gilmer, MJ, Davies, B, Barrera, M, Fairclough, D, Vannatta, K, Gerhardt, C. |
| Source: | Journal of Pediatric Oncology Nursing, Vol. 26:6, 369-376 |
| Label: | Family Experience |
Bereaved Parents’ Perspectives on Their Needs
| Date: | 2008 |
|---|---|
| Author(s): | D’Agostino, N. Berlin-Romalis, D., Jovcevska, V. & Barrera, M. |
| Source: | Palliative and Supportive Care, 6, 33-41 |
| Label: | Family Experience |
Parents’ Reactions to Participating in Interviews about End-of-Life Decision Making
| Date: | 2006 |
|---|---|
| Author(s): | Michelson, K.N., Koogler, T.K., Skipton, K., Sullivan, C., & Frader, J. |
| Source: | Journal of Palliative Medicine; 9(6): 1329-1338 |
| Label: | Decision Making, End of Life, Family Experience, Research |
End of Life Decision Making by Adolescent, Parents, and Healthcare Providers in Pediatric Oncology
| Date: | 2001 |
|---|---|
| Author(s): | Hinds, P.S., Oakes, L., Furman, W., Quargnenti, A., Olson, M.S., Foppiano, P., & Srivastava, D.K. |
| Source: | Cancer Nursing; 24(2): 122-136 |
| Label: | Adolescents, Cancer, Decision Making, End of Life, Family Experience, Health Care Providers |
“We want everything done”
| Date: | 2008 |
|---|---|
| Author(s): | Gillis, J. |
| Source: | Archives of Diseases in Childhood; 93(3): 192-193 |
| Label: | Decision Making, Ethics, Family Experience, Psychosocial |
The Best Interests Test at the End of Life on the Pediatric Intensive Care Unit
| Date: | 2008 |
|---|---|
| Author(s): | Inwald, D. |
| Source: | Archives of Diseases in Childhood; 9: 248-250 |
| Label: | End of Life, Family Experience, Psychosocial |
Understanding Parents’ Approaches to Treatment of Children with Cancer when Therapy has Failed
| Date: | 2007 |
|---|---|
| Author(s): | Bluebond-Langer, M., Belasco, J.B., Goldman, A., & Belasco, C. |
| Source: | Journal of Clinical Oncology; 25(17); 2414-2419 |
| Label: | Cancer, Family Experience, Treatment |
Hospital Care for Parents after Perinatal Death
| Date: | 2007 |
|---|---|
| Author(s): | Gold, K.J., Dalton, V.K., & Schwenk, T.L. |
| Source: | Obstetrics and Gynecology; 109(5); 1156-1166 |
| Label: | Family Experience, Grief & Bereavement, Neonatal/Perinatal Care |
Infant End-of-Life Care: The Parents’ Perspective
| Date: | 2007 |
|---|---|
| Author(s): | Brosig, C.L., Pierucci, R.L., Kupst, M.J., & Leuthner, S.R. |
| Source: | Journal of Perinatology; 27; 510-516 |
| Label: | End of Life, Family Experience, Neonatal/Perinatal Care |
The Moral Experience of Families with Ventilator- Assisted Children at Home
| Date: | 2006 |
|---|---|
| Author(s): | Carnevale, F.A., Alexander, E., Davis, M., Rennick, J., & Troini, R. |
| Source: | Pediatrics; 117; 48-60 |
| Label: | Ethics, Family Experience, Home Care |
Key Factors Affecting Dying Children and Their Families
| Date: | 2005 |
|---|---|
| Author(s): | Hinds, P.S., Schum, L., Baker, J.N., & Wolfe, J. |
| Source: | Journal of Palliative Medicine; 8(S1); S-70-S-78 |
| Label: | End of Life, Family Experience |
Parental Perspectives on Hospital Staff Members’ Acts of Kindness After a Child’s Death
| Date: | 2005 |
|---|---|
| Author(s): | Macdonald, M.E., Liben, S., Carnevale, F.A., Rennick, J.E., Wolf, S.L., Meloche, D., & Cohen, R. |
| Source: | Pediatrics; 116; 884-890 |
| Label: | Family Experience, Grief & Bereavement, Health Care Providers, Psychosocial |
Understanding of Prognosis among Parents of Children who Died of Cancer
| Date: | 2000 |
|---|---|
| Author(s): | Wolfe, J., Klar, N., Grier, H.E., Duncan, J., Salem-Schatz, S., Emanuel, E.J., & Weeks, J.C. |
| Source: | Journal of the American Medical Association; 284(19); 2469-2475 |
| Label: | Cancer, Communication, Education, Family Experience, Grief & Bereavement, Treatment |
Managing Communication with Young People who have Potentially Life Threatening Chronic Illness
| Date: | 2003 |
|---|---|
| Author(s): | Young, B., Dixon-Woods, M., Windridge, K.C., & Heney, D. |
| Source: | British Medical Journal; 326:305 |
| Label: | Adolescents, Communication, Education, Family Experience |
Parents’ and Children’s Perspectives of a Children’s Hospice Bereavement Program
| Date: | 2007 |
|---|---|
| Author(s): | Davies, B., Collins, J.B., Steele, R., Cook, K., Distler, V., & Brenner, A. |
| Source: | Journal of Palliative Care; 23(1); 14-23 |
| Label: | Family Experience, Grief & Bereavement, Hospice |
Children’s Perspectives of a Pediatric Hospice Program
| Date: | 2005 |
|---|---|
| Author(s): | Davies, B., Collins, J.B., Steele, R., Cook, K., Brenner, A., & Smith, S. |
| Source: | Journal of Palliative Care; 21(4); 252-261 |
| Label: | Family Experience, Hospice |
Cancer-Related Symptoms most Concerning to Parents during Last Week/Day of Child’s Life
| Date: | 2008 |
|---|---|
| Author(s): | Pritchard, M., Burghen, E., Srivastava, D.K., Okuma, J., Anderson, L., Powell, B., Furman, W.L., & Hinds, P.S. |
| Source: | Pediatrics; 121(5); e1301-e1309 |
| Label: | Cancer, End of Life, Family Experience, Pain & Symptom Management |
Improving the Quality of End of Life Care in the Pediatric Intensive Care Unit
| Date: | 2006 |
|---|---|
| Author(s): | Meyer, E.C., Ritholz, M.D., Burns, J.P., & Truog, R.D. |
| Source: | Pediatrics; 117; 649-657 |
| Label: | End of Life, Family Experience, Pain & Symptom Management |
Living in a World without Closure: Reality for Parents who have Experienced the Death of a Child
| Date: | 2006 |
|---|---|
| Author(s): | Woodgate, R.L. |
| Source: | Journal of Palliative Care; 22(2); 75-82 |
| Label: | Family Experience, Grief & Bereavement, Psychosocial |
Home Care of a Child Dying of a Malignancy and Parental Awareness of a Child’s Impending Death
| Date: | 2006 |
|---|---|
| Author(s): | Surkan, P.J., Dickman, P.W., Steineck, G., Onelov, E., & Kreicbergs, U. |
| Source: | Palliative Medicine; 20; 161-169 |
| Label: | Cancer, Communication, Education, Family Experience, Home Care |
Parent and Physician Perspectives on Quality of Care at End of Life in Children with Cancer
| Date: | 2005 |
|---|---|
| Author(s): | Mack, J.W., Hilden, J.M., Watterson, J., Moore, C., Turner, B., Grier, H.E., Weeks, J.C., & Wolfe, J. |
| Source: | Journal of Clinical Oncology; 23(36); 9155-9161 |
| Label: | Cancer, End of Life, Family Experience, Health Care Providers |
Impact on Parents when a Child has a Progressive, Life-Threatening Illness
| Date: | 2006 |
|---|---|
| Author(s): | Steele, R. & Davies, B. |
| Source: | International Journal of Palliative Nursing; 12(12); 576- 585 |
| Label: | Family Experience |
Communicating with Children and Families
| Date: | 2008 |
|---|---|
| Author(s): | Levetown, M., and the Committee on Bioethics |
| Source: | Pediatrics; 121; e1441-e1460 |
| Label: | Communication, Family Experience, Health Care Providers |
Family Perspectives on the Quality of Pediatric Palliative Care
| Date: | 2002 |
|---|---|
| Author(s): | Contro, N., Larson, J., Scofield, S., Sourkes, B., & Cohen, H. |
| Source: | Archives of Pediatric and Adolescent Medicine; 156; 14-19 |
| Label: | Family Experience, Pain & Symptom Management, Treatment |
Matters of Spirituality at the End of Life in the Pediatric Intensive Care Unit
| Date: | 2006 |
|---|---|
| Author(s): | Robinson, M.R., Thiel, M.M., Backus, M.M., & Meyer, E.C. |
| Source: | Pediatrics; 118; 719-729 |
| Label: | End of Life, Family Experience, Spirituality |