Literature Database
Research

Gender imbalance in pediatric palliative care research samples

Date:

2009

Author(s):

Macdonald, M.E., Chilibeck, G., Affleck, W., Cadel, S

Source:

Palliative Medicine. 0(00):1-10

Label: Research

Bereaved parents’ experience of research participation

Date:

2004

Author(s):

Dyregrov, Kari

Source:

Social Science & Medicine 58: 391-400

Label: Research

Addressing ethical concerns regarding pediatric palliative care research

Date:

2009

Author(s):

Rapoport, Adam

Source:

Archives of Pediatric Adolescent Medicine. Volume 163 (No.8):

Label: Research

Research with families in palliative care: conceptual and methodological challenges

Date:

1998

Author(s):

McClement, S.E., & Woodgate, R.L

Source:

European Journal of Cancer Care. Vol. 7:247-254

Label: Research

What we don’t know about how we decide

Date:

2010

Author(s):

Feudtner, Chris

Source:

American Medical Assocation Journal of Ethics. Volume 12, Number 7:586-589

Label: Research

Challenges and lessons learned from conducting palliative care research

Date:

2009

Author(s):

O’Mara, A., St. Germain, D., Ferrell, B. & Bornemann, T.

Source:

J Pain Symptom Manage, 37(3): 387–394

Label: Research

Decision-making by Adolescents and Parents of Children With Cancer Regarding Health Research Partici

Date:

2009

Author(s):

Read, K.,Fernandez, C.V.,Gao, J.,Strahlendorf, C.,Moghrabi, A.,Davis Pentz, R.,Carlton Barfield, R., Baker, J.N.,Santor, D.,Weijer, C., & Kodish, E.

Source:

PEDIATRICS, 124(3), pp. 959-965

Label: Research

Challenges to participation in paediatric palliative care research: A review of the literature

Date:

2007

Author(s):

Tomlinson, D., Bartels, U., Hendershot, E., Constantin, J., Wrathall, G., & Sung, L.

Source:

Palliative Medicine, 21: 435-440

Label: Research

Health-Related Quality of Life and Enrolment in Phase I Trials in Children With Incurable Cancer

Date:

2005

Author(s):

Barrera, M., D’Agostino, N., Spencer, L., Gammon, J. & Baruchel, S.

Source:

Palliative Supportive Care, 3, 191-196

Label: Research

Conducting a Qualitative Culture Study of Pediatric Palliative Care

Date:

2009

Author(s):

Davies, B., Larson, J., Contro, N., Reyes-Hailey, C., Ablin, A.R., Chesla, C.A., Sourkes, B., Cohen, H.

Source:

Qualitative Health Research, 19, 5-16

Label: Research

Research Priorities in Pediatric Palliative Care: A Delphi Study

Date:

2008

Author(s):

Steele, R., Bosma, H., Fletcher Johnston, M., Cadell, S., Davies, B., Siden, H., Straatman, L.

Source:

Journal of Palliative Care, 24, 229-287

Label: Research

Parents’ Reactions to Participating in Interviews about End-of-Life Decision Making

Date:

2006

Author(s):

Michelson, K.N., Koogler, T.K., Skipton, K., Sullivan, C., & Frader, J.

Source:

Journal of Palliative Medicine; 9(6): 1329-1338

Label: Decision Making, End of Life, Family Experience, Research

Child versus Adult Research: The Gap in High Quality Study Design

Date:

2008

Author(s):

Martinez-Castaldi, C., Silverstein, M., & Bauchner, H.

Source:

Pediatrics; 122; 52-57

Label: Research

Involving Children with Cancer in Decision Making about Research Participation

Date:

2006

Author(s):

Joffe, S., Fernandez, C.V., Pentz, R.D., Ungar, D.R., Matthew, N.A., Turner, C.W., Alessandri, A.J., Woodman, C.L., Singer, D.A., & Kodish, E.

Source:

The Journal of Pediatrics; 149; 862-868

Label: Cancer, Decision Making, Ethics, Research

Participatory Research in Pediatric Palliative Care: Benefits and Challenges

Date:

2007

Author(s):

Mongeau, S., Champagne, M. & Liben, S.

Source:

Journal of Palliative Care; 23(1); 5-13

Label: Ethics, Research

End of Life Research as a Priority for Pediatric Oncology

Date:

2004

Author(s):

Hinds, P.S., Pritchard, M., & Harper, J.

Source:

Journal of Pediatric Oncology Nursing; 21; 175-179

Label: Cancer, End of Life, Research

Challenges to Participation in Paediatric Palliative Care Research: A Review of the Literature

Date:

2007

Author(s):

Tomlinson, D., Bartels, U., Hendershot, E., Constantin, J., Wrathall, G., Sung, L.

Source:

Palliative Medicine; 21; 435-440

Label: Ethics, Research, Reviews

Barriers to Palliative Care for Children: Perceptions of Pediatric Health Care Providers

Date:

2008

Author(s):

Davies, B., Sehring, S.A., Partridge, J.C., Cooper, B.A., Hughes, A., Philp, J.C., Amidi-Nouri, A., & Kramer, R.F.

Source:

Pediatrics; 121; 282-288

Label: Ethics, Health Care Providers, Research

Research with Bereaved Parents: A Question of How not Why

Date:

2006

Author(s):

Hynson, J.L., Aroni, R., Bauld, C., & Sawyer, S.M.

Source:

Palliative Medicine; 20; 805-811

Label: Grief & Bereavement, Research