Publications
by TRAC-PG Members

Davies, B., Contro, N., Larson, J. & Widger, K. (2010) Culturally-Sensitive Information-Sharing in Pediatric Palliative Care Pediatrics, 125 (4), e859-e865

Thompson, A.L., Miller, K.S., Barrera, M., Compas, B.E., Davies, B., Fairclough, D.L., Foster, T.L, Gilmer, M., Hogan, N., Vannatta, K., & Gerhardt, C.A. (2009 under review) A qualitative study of advice from bereaved parents and siblings Journal of Social Work

D’Agostino, N. Berlin-Romalis, D., Jovcevska, V. & Barrera, M. (2008) Bereaved parents’ perspectives on their needs Palliative and Supportive Care, 6, 33-41

Janzen, L.M., Cadell, S. & Westhues, A. (2004) Dealing with the Sudden Death of a Child: Advice to Professionals from Parents Omega: Journal of Death and Dying. 48(2), 175-190

Widger, K., Davies, D., Drouin, D., Beaune, L., Daoust, L., Farran, P., Humbert, N., Nalewajek, F., Rattray, M., Rugg, M., Bishop, M. (2007) Pediatric Patients Receiving Palliative Care in Canada: Results of a Multicenter Review Archives in Pediatric Adolescent Medicine, 161:597-602

Foster, T, Gilmer, MJ, Davies, B, Barrera, M, Fairclough, D, Vannatta, K, Gerhardt, C. (2009, In Press) A qualitative study of continuing bonds: maintaining connections after the death of a child. Death Studies.

Dupuis,LL., Milne-Wren, C.,Cassidy, M., Barrera, M., Portwine,C., Johnston, DL., Silva, MP., Sibbald, C., Leaker, M., Routh, S., & Sung, L. (2009, In Press) Symptom assessment in children receiving cancer therapy: the parents’ perspective. Journal of Supportive Care in Cancer.

Foster, T, Gilmer, MJ, Davies, B, Barrera, M, Fairclough, D, Vannatta, K, Gerhardt, C. (2009) Bereaved parents’ and siblings’ reports of legacies created by children with cancer. Journal of Pediatric Oncology Nursing, Vol. 26:6, 369-376

Rapoport, A. (2009) Addressing Ethical Concerns Regarding Pediatric Palliative Care Research Arch Pediatr Adolesc Med, 163(8), pp.688-691

Steele, R., Robinson, C., Hansen, L., & Widger, K. (in press) Families and palliative/end-of-life care

Cadell, S., Ho, G., Jacques, L., Wilson, K., Davies, B., & Steele, R. (2009) Considerations for ethics in multisite research in pediatric palliative care [Letter to the Editor] Palliative Medicine, 23, 274-275

Widger, K., Steele, R. Davies, B., & Oberle, K. (2009) Exploring the Supportive Care Model as a framework for pediatric palliative care Journal of Hospice and Palliative Nursing, 11(4), 209-216

Antle, B.J., Montgomery, G., & Stapleford, C. (2009) The Many Layers of Social Support: Capturing the Voices of Young People with Spina Bifida and Their Parents Health & Social Work, 34(2), 97-106

Beaune, L & Newman, C (2003) In Search of a Good Death: Can children withlife threatening illness and their families experience a good death? BMJ, 327, 222-223, Letter to the Editor

Barrera, M., O’Connor, K., D’Agostino, N.M., Spencer, L., Nicholas, D., Jovcevska, V., Tallet, S., & Schneiderman, G. (2009) Early Parental Adjustment and Bereavement after Childhood Cancer Death Death Studies, 33, 1-24

Rugg, M. (May 2008) Advance care planning in pediatric palliative care: Do we really know what they are asking? Hot Spot 10(2)

Steele, R., Bosma, H., Fletcher Johnston, M., Cadell, S., Davies, B., Siden, H., Straatman, L. (2008) Research priorities in pediatric palliative care: A delphi study Journal of Palliative Care, 24, 229-287

Straatman, L., Cadell, S., Davies, B., Siden, H., & Steele, R. (2008 In Press) Update on pediatric palliative care research: Development of a New Emerging Team Paediatrics and Child Health

Steele, R., Derman, S., Cadell, S., Davies, B., Siden, H., & Straatman, L. (2008 In Press) Exploring families’ transition into a pediatric hospice: Part 1 International Journal of Palliative Nursing

Steele, R., Derman, S., Cadell, S., Davies, B., Siden, H., & Straatman, L. (2008 In Press) Exploring families’ transition into a pediatric hospice: Part 2 International Journal of Palliative Nursing