Widger, K. & Picot, K. (2008) Parents’ perceptions of the quality of pediatric and perinatal end-of-life care Pediatric Nursing, 34(1), 53-58
Publications
by TRAC-PG Members
Rapaport, A. (May/June 2008) A place to die: The case for paediatric inpatient hospices Paediatric Child Health, 13(5), 369-370
Tomlinson, D., Bartels, U., Hendershot, E., Constantin, J., Wrathall, G., & Sung, L. (2007) Challenges to participation in paediatric palliative care research: A review of the literature Palliative Medicine, 21: 435-440
Barrera, M., D'Agostino, N., Schneiderman, G., Tallett, S., & Spencer, L. (2007 ) Parental bereavement after the loss of a child Omega, 55 (2), 149-171
Davies, B., Collins, J., Steele, R., Cook, K., Distler, V., & Brenner, A. (2007) Parents’ and childrens’ perspectives of a children’s hospice bereavement program Journal of Palliative Care, 23(1):14-23
Rapaport, A. (May 2006) Forgoing nutrition and hydration in children at the end of life: Is it ever justified? Hotspot, 8(2): 5
Steele, R. & Davies, B. (2006) Impact on parents when a child has a progressive, life-threatening illness International Journal of Palliative Nursing, 12(11), 526-535
Barrera, M., D'Agostino, N., Spencer, L., Gammon, J., & Baruchel, S. (2005) Health-related quality of life and enrolment in phase 1 trials in children with incurable cancer Palliative Supportive Care, 3, 191-196
Davies, B., Collins, J., Steele, R., Cook, K., & Smith, S. (2005) Children’s perspectives of a pediatric hospice program Journal of Palliative Care, 21(4), 252-261
Antle, B., Barrera, M., Beaune, L., D'Agostino, N, & Good, N. (2005) Pediatric palliative care: What do parents want? Rehab & Community Care Medicine, 24, 24-26
Steele, R. (2005) Strategies used by families to navigate uncharted territory when a child is dying Journal of Palliative Care, 21(2), 103-110
Steele, R. (2005) Navigating uncharted territory: Experiences of families when a child is dying Journal of Palliative Care, 21(1) 35-43
Steele, R., Davies, B., Collins, J., & Cook, K. (2005) End-of-life care in a children’s hospice program Journal of Palliative Care, 21(1), 5-11
Tomlinson D, Capra ML, Hinds P, Barrera M, Gammon J, Volpe J, Bouffet E, Llewllyn-Thomas HA, Sung L, (2006) Parental decision making between palliative chemotherapy and supportive care alone in pediatric cancer end-of-life care: using focus group methodology as a prephase to seek participant design input. European Journal of Oncology Nursing, 10,198-206
Davies, B., Steele, R., Collins, J., Cook, K., & Smith, S. (2004) The impact on families of respite care services in a children’s hospice program. Journal of Palliative Care, 20(4), 277-286.
