Cadell, S., Ho, G., Jacques, L., Wilson, K., Davies, B., & Steele, R. (2009) Considerations for ethics in multisite research in pediatric palliative care [Letter to the Editor] Palliative Medicine, 23, 274-275
Publications
by TRAC-PG Members
Widger, K., Steele, R. Davies, B., & Oberle, K. (2009) Exploring the Supportive Care Model as a framework for pediatric palliative care Journal of Hospice and Palliative Nursing, 11(4), 209-216
Antle, B.J., Montgomery, G., & Stapleford, C. (2009) The Many Layers of Social Support: Capturing the Voices of Young People with Spina Bifida and Their Parents Health & Social Work, 34(2), 97-106
Beaune, L & Newman, C (2003) In Search of a Good Death: Can children withlife threatening illness and their families experience a good death? BMJ, 327, 222-223, Letter to the Editor
Barrera, M., O’Connor, K., D’Agostino, N.M., Spencer, L., Nicholas, D., Jovcevska, V., Tallet, S., & Schneiderman, G. (2009) Early Parental Adjustment and Bereavement after Childhood Cancer Death Death Studies, 33, 1-24
Rugg, M. (May 2008) Advance care planning in pediatric palliative care: Do we really know what they are asking? Hot Spot 10(2)
Steele, R., Bosma, H., Fletcher Johnston, M., Cadell, S., Davies, B., Siden, H., Straatman, L. (2008) Research priorities in pediatric palliative care: A delphi study Journal of Palliative Care, 24, 229-287
Straatman, L., Cadell, S., Davies, B., Siden, H., & Steele, R. (2008 In Press) Update on pediatric palliative care research: Development of a New Emerging Team Paediatrics and Child Health
Steele, R., Derman, S., Cadell, S., Davies, B., Siden, H., & Straatman, L. (2008 In Press) Exploring families’ transition into a pediatric hospice: Part 1 International Journal of Palliative Nursing
Steele, R., Derman, S., Cadell, S., Davies, B., Siden, H., & Straatman, L. (2008 In Press) Exploring families’ transition into a pediatric hospice: Part 2 International Journal of Palliative Nursing
Widger, K. & Picot, K. (2008) Parents’ perceptions of the quality of pediatric and perinatal end-of-life care Pediatric Nursing, 34(1), 53-58
Rapaport, A. (May/June 2008) A place to die: The case for paediatric inpatient hospices Paediatric Child Health, 13(5), 369-370
Tomlinson, D., Bartels, U., Hendershot, E., Constantin, J., Wrathall, G., & Sung, L. (2007) Challenges to participation in paediatric palliative care research: A review of the literature Palliative Medicine, 21: 435-440
Barrera, M., D'Agostino, N., Schneiderman, G., Tallett, S., & Spencer, L. (2007 ) Parental bereavement after the loss of a child Omega, 55 (2), 149-171
Davies, B., Collins, J., Steele, R., Cook, K., Distler, V., & Brenner, A. (2007) Parents’ and childrens’ perspectives of a children’s hospice bereavement program Journal of Palliative Care, 23(1):14-23
Rapaport, A. (May 2006) Forgoing nutrition and hydration in children at the end of life: Is it ever justified? Hotspot, 8(2): 5
Steele, R. & Davies, B. (2006) Impact on parents when a child has a progressive, life-threatening illness International Journal of Palliative Nursing, 12(11), 526-535
Barrera, M., D'Agostino, N., Spencer, L., Gammon, J., & Baruchel, S. (2005) Health-related quality of life and enrolment in phase 1 trials in children with incurable cancer Palliative Supportive Care, 3, 191-196
Davies, B., Collins, J., Steele, R., Cook, K., & Smith, S. (2005) Children’s perspectives of a pediatric hospice program Journal of Palliative Care, 21(4), 252-261
Antle, B., Barrera, M., Beaune, L., D'Agostino, N, & Good, N. (2005) Pediatric palliative care: What do parents want? Rehab & Community Care Medicine, 24, 24-26
